A resolution expressing support for the designation of June 19, 2026, as "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.

This resolution expresses strong support for the designation of June 19, 2026, as "World Sickle Cell Awareness Day," aiming to significantly increase public awareness about sickle cell disease (SCD) across the United States and globally. It highlights the urgent need for continued **empirical research**, enhanced **early detection screenings**, and the development of **novel effective treatments** that can lead to a cure. Furthermore, the resolution underscores the importance of robust preventative care programs to manage complications arising from sickle cell anemia and related conditions. The resolution commits to ensuring **equitable access** to new SCD treatments for all economic, racial, and ethnic groups, striving to improve health outcomes for individuals living with the disease. It specifically calls on the Department of Health and Human Services to develop global policy solutions, in partnership with local governments, to provide access to newborn screening programs, therapeutic interventions, and support services. Additionally, it encourages the President to establish a **Sickle Cell Disease Interagency Group** to address policies that support equitable access to innovative SCD therapies, including cell, gene, and gene-editing treatments, while also confronting the biases faced by affected populations within healthcare systems.