Expressing support for a "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.

This resolution expresses strong support for "World Sickle Cell Awareness Day" to significantly increase public awareness about sickle cell disease (SCD) across the United States and the global community. It highlights the critical need for continued empirical research, early detection screenings, the development of novel effective treatments leading to a cure, and robust preventative care programs to manage complications arising from SCD. The House of Representatives commits to ensuring equitable access to new SCD treatments for all economic, racial, and ethnic groups, aiming to improve health outcomes for affected individuals. It specifically calls on the Department of Health and Human Services to develop global policy solutions that provide support for the international community, including access to newborn screening programs, therapeutic interventions, and essential support services. Furthermore, the resolution advocates for eliminating barriers to equitable access for innovative SCD therapies, such as cell, gene, and gene-editing treatments, within the Medicare and Medicaid systems for vulnerable patients. It encourages the President to establish a Sickle Cell Disease Interagency Group, comprising key federal agencies, to formulate policies that ensure appropriate and equitable access to these advanced therapies. Finally, this interagency group is urged to not only address access to potential future curative treatments for SCD but also to confront and mitigate the systemic bias that the population most affected by SCD continues to encounter within both United States and global healthcare systems.