Expressing support for the designation of June 19, 2025, as "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.
United States119th CongressHRES-524House of Representatives
Updated: Jun 20, 2025
Summary
This resolution expresses strong support for the designation of June 19, 2025, as "World Sickle Cell Awareness Day," aiming to significantly increase public awareness about sickle cell disease (SCD) across the United States and globally. It highlights the urgent need for continued empirical research, comprehensive early detection screenings, the development of novel effective treatments leading to a cure, and robust preventative care programs to manage complications from sickle cell anemia and related conditions. The resolution underscores that SCD is a major inherited red blood cell disorder with a significant global impact, affecting millions and disproportionately impacting certain populations. To address these challenges, the House of Representatives commits to ensuring equitable access to new SCD treatments for all economic, racial, and ethnic groups, and calls on the Department of Health and Human Services to develop global policy solutions . These solutions should provide support for newborn screening programs, therapeutic interventions, and support services worldwide. Furthermore, the resolution advocates for eliminating barriers to equitable access for innovative SCD therapies, including cell, gene, and gene-editing treatments, within the Medicare and Medicaid systems for vulnerable patients. It also encourages the President to establish a Sickle Cell Disease Interagency Group to address access to future curative treatments and combat the systemic bias faced by individuals affected by SCD within healthcare systems.
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SRES-292: A resolution expressing support for the designation of June 19, 2025, as "World Sickle Cell Awareness Day" in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease.Referred to the Committee on Foreign Relations. (text: CR S3476)
Referred to the House Committee on Energy and Commerce.
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