A resolution designating February 28, 2026, as "Rare Disease Day".

United States119th CongressSRES-620Senate
Updated: Feb 26, 2026

Summary

This resolution officially designates February 28, 2026, as "Rare Disease Day" to acknowledge the significant impact of these conditions. A rare disease is defined in the United States as affecting fewer than 200,000 individuals, yet over 30 million Americans live with one of more than 10,000 known rare diseases. Many of these conditions are serious and life-threatening, presenting challenges in obtaining accurate diagnoses, finding expert physicians, and affording life-altering treatments, despite advancements like the Orphan Drug Act. Approximately 95 percent of rare diseases still lack an FDA-approved treatment, underscoring the critical need for continued research and development. By designating this day, the Senate aims to improve public awareness, encourage accurate and early diagnosis, and support national and global research efforts to develop effective treatments, diagnostics, and cures for these underserved populations.

Bill texts

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Agreed To (Senate)View official text

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Timeline

  1. Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S716; text: CR S711)

    Senate

  2. Passed/agreed to in Senate: Submitted in the Senate, considered, and agreed to without amendment and with a preamble by Unanimous Consent. (consideration: CR S716; text: CR S711)

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