This bill, known as Ellie's Law , aims to significantly bolster research into unruptured intracranial aneurysms by authorizing dedicated funding for the National Institute of Neurological Disorders and Stroke (NINDS). It proposes to appropriate $10,000,000 annually for fiscal years 2026 through 2030, with funds remaining available until September 30, 2033. The legislation highlights that an estimated 6.8 million Americans have an unruptured brain aneurysm, with ruptures causing death in about 50% of cases and permanent neurological deficits in 66% of survivors. It notes that aneurysms are more prevalent in women and nearly twice as likely to rupture in African American and Hispanic individuals, and despite a significant fiscal impact estimated at $2 billion annually, federal research spending is currently very low. The authorized funds are intended to support comprehensive research that studies a broader patient population , diversified by age, sex, and race, to enhance understanding and treatment strategies. Importantly, these funds are mandated to supplement, not supplant , existing funding for brain aneurysm research, ensuring an overall increase in investment for this critical area of neurological health.
This bill, known as Ellie's Law , aims to significantly bolster research into unruptured intracranial aneurysms by authorizing dedicated funding for the National Institute of Neurological Disorders and Stroke (NINDS). It proposes to appropriate $10,000,000 annually for fiscal years 2026 through 2030, with funds remaining available until September 30, 2033. The legislation highlights that an estimated 6.8 million Americans have an unruptured brain aneurysm, with ruptures causing death in about 50% of cases and permanent neurological deficits in 66% of survivors. It notes that aneurysms are more prevalent in women and nearly twice as likely to rupture in African American and Hispanic individuals, and despite a significant fiscal impact estimated at $2 billion annually, federal research spending is currently very low. The authorized funds are intended to support comprehensive research that studies a broader patient population , diversified by age, sex, and race, to enhance understanding and treatment strategies. Importantly, these funds are mandated to supplement, not supplant , existing funding for brain aneurysm research, ensuring an overall increase in investment for this critical area of neurological health.