This resolution seeks to establish June 10 as "FSGS Awareness Day" to highlight focal segmental glomerulosclerosis, a severe and rare kidney disease. FSGS causes scarring in the kidneys, frequently leading to kidney failure, dialysis, or transplant within 5-10 years of diagnosis, and can recur in transplanted kidneys up to 50 percent of the time. This condition significantly impacts patients' lives and places a substantial burden on the healthcare system, costing billions annually. Many patients face diagnostic delays averaging 5-7 years due to the disease's rarity and a shortage of specialized nephrology care. FSGS disproportionately affects minority populations, particularly African Americans, at rates 4 to 5 times higher than White Americans, partly due to specific genetic factors. However, there is new hope with ongoing clinical trials for potential therapies and significant progress being made in research and advocacy efforts. The House of Representatives supports this designation and applauds the tireless work of advocates, organizations, researchers, and healthcare professionals. It recognizes their commitment to encouraging awareness, promoting research, and providing education and support to those impacted by FSGS, ultimately striving for effective treatments and an eventual cure.
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Timeline
Submitted in House
Referred to the House Committee on Energy and Commerce.
Submitted in House
Referred to the House Committee on Energy and Commerce.
Health
Expressing support for the designation of June 10 as "FSGS Awareness Day".
USA119th CongressHRES-507| House
| Updated: 6/12/2025
This resolution seeks to establish June 10 as "FSGS Awareness Day" to highlight focal segmental glomerulosclerosis, a severe and rare kidney disease. FSGS causes scarring in the kidneys, frequently leading to kidney failure, dialysis, or transplant within 5-10 years of diagnosis, and can recur in transplanted kidneys up to 50 percent of the time. This condition significantly impacts patients' lives and places a substantial burden on the healthcare system, costing billions annually. Many patients face diagnostic delays averaging 5-7 years due to the disease's rarity and a shortage of specialized nephrology care. FSGS disproportionately affects minority populations, particularly African Americans, at rates 4 to 5 times higher than White Americans, partly due to specific genetic factors. However, there is new hope with ongoing clinical trials for potential therapies and significant progress being made in research and advocacy efforts. The House of Representatives supports this designation and applauds the tireless work of advocates, organizations, researchers, and healthcare professionals. It recognizes their commitment to encouraging awareness, promoting research, and providing education and support to those impacted by FSGS, ultimately striving for effective treatments and an eventual cure.