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Expressing support for the designation of May 2, 2025, as "NKH Awareness Day".

USA119th CongressHRES-385| House 
| Updated: 5/5/2025
Eugene Simon Vindman

Eugene Simon Vindman

Democratic Representative

Virginia

Cosponsors (1)
Ben Cline (Republican)

Energy and Commerce Committee

  • Introduced
  • In Committee
  • On Floor
  • Passed Chamber
  • Enacted
This resolution expresses strong support for designating May 2, 2025, as "NKH Awareness Day" to highlight a critical rare disease. It aims to raise public and medical community awareness regarding Nonketotic Hyperglycinemia (NKH) , also known as glycine encephalopathy, which is a rare genetic metabolic disorder. NKH is caused by a genetic mutation preventing the breakdown of glycine, leading to its accumulation in the body, especially the brain and spinal cord. This severe condition affects approximately 1 in 76,000 people worldwide, with only about 500 diagnosed cases globally, and often prevents affected children from reaching typical developmental milestones. The resolution emphasizes that increased awareness can lead to more research, greater participation in patient registries, and improved diagnoses for those living with NKH.
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Timeline
May 5, 2025
Submitted in House
May 5, 2025
Referred to the House Committee on Energy and Commerce.
  • May 5, 2025
    Submitted in House


  • May 5, 2025
    Referred to the House Committee on Energy and Commerce.

Health

Expressing support for the designation of May 2, 2025, as "NKH Awareness Day".

USA119th CongressHRES-385| House 
| Updated: 5/5/2025
This resolution expresses strong support for designating May 2, 2025, as "NKH Awareness Day" to highlight a critical rare disease. It aims to raise public and medical community awareness regarding Nonketotic Hyperglycinemia (NKH) , also known as glycine encephalopathy, which is a rare genetic metabolic disorder. NKH is caused by a genetic mutation preventing the breakdown of glycine, leading to its accumulation in the body, especially the brain and spinal cord. This severe condition affects approximately 1 in 76,000 people worldwide, with only about 500 diagnosed cases globally, and often prevents affected children from reaching typical developmental milestones. The resolution emphasizes that increased awareness can lead to more research, greater participation in patient registries, and improved diagnoses for those living with NKH.
View Full Text

Suggested Questions

Get AI-generated questions to help you understand this bill better

Timeline
May 5, 2025
Submitted in House
May 5, 2025
Referred to the House Committee on Energy and Commerce.
  • May 5, 2025
    Submitted in House


  • May 5, 2025
    Referred to the House Committee on Energy and Commerce.
Eugene Simon Vindman

Eugene Simon Vindman

Democratic Representative

Virginia

Cosponsors (1)
Ben Cline (Republican)

Energy and Commerce Committee

Health

  • Introduced
  • In Committee
  • On Floor
  • Passed Chamber
  • Enacted