Expressing support for the designation of May 15, 2025, as "Prader-Willi Syndrome Awareness Day" to raise awareness of and promote research on the disorder.

This resolution supports the designation of May 15, 2025, as "Prader-Willi Syndrome Awareness Day" to significantly raise public awareness and encourage research into this complex genetic disorder. Prader-Willi syndrome (PWS) is a rare condition affecting approximately 1 in 15,000 births, characterized by life-threatening obesity, cognitive disabilities, and behavioral difficulties. There is currently no known cure for PWS, and individuals often face challenges with diagnosis and limited treatment options. The resolution highlights that PWS causes an insatiable appetite, leading to severe obesity, which is a major cause of death for affected individuals. Other symptoms include low muscle tone, developmental delays, and emotional regulation difficulties. Increased research is crucial not only for understanding PWS but also for gaining insights into broader public health concerns like childhood obesity and mental health. The House of Representatives applauds the efforts of advocates and organizations dedicated to supporting those impacted by PWS. It recognizes the commitment of parents, families, researchers, and health professionals working towards effective treatments and an eventual cure. The resolution emphasizes the importance of improving awareness, encouraging accurate and early diagnosis, advancing research, developing new treatments, and identifying regulatory pathways for drug development for rare diseases like PWS.