Recognizing the significance of Sjögren's disease as a serious and systemic autoimmune disease and expressing support for the designation of April 2025 as "Sjögren's Awareness Month".
This resolution acknowledges Sjogren's disease as a serious and systemic autoimmune condition affecting millions, characterized by profound fatigue, extensive dryness, and pain, with potential complications including organ involvement and lymphomas. It highlights the difficulty in diagnosis due to lack of a single test and unfamiliarity among many healthcare providers, leading to high out-of-pocket costs for patients. The House of Representatives encourages the Secretary of Health and Human Services and other relevant agencies to significantly expand and enhance research into Sjogren's disease, including understanding its causes and identifying biomarkers for better diagnosis and targeted therapies. Furthermore, it calls for improved tracking of patient numbers, updating and disseminating literature to health providers, and building awareness in underserved areas to ensure accurate diagnoses and appropriate care. The resolution also expresses strong support for designating April 2025 as "Sjogren's Awareness Month" to further these goals.
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Timeline
Submitted in House
Referred to the House Committee on Energy and Commerce.
Submitted in House
Referred to the House Committee on Energy and Commerce.
Health
Recognizing the significance of Sjögren's disease as a serious and systemic autoimmune disease and expressing support for the designation of April 2025 as "Sjögren's Awareness Month".
USA119th CongressHRES-245| House
| Updated: 3/24/2025
This resolution acknowledges Sjogren's disease as a serious and systemic autoimmune condition affecting millions, characterized by profound fatigue, extensive dryness, and pain, with potential complications including organ involvement and lymphomas. It highlights the difficulty in diagnosis due to lack of a single test and unfamiliarity among many healthcare providers, leading to high out-of-pocket costs for patients. The House of Representatives encourages the Secretary of Health and Human Services and other relevant agencies to significantly expand and enhance research into Sjogren's disease, including understanding its causes and identifying biomarkers for better diagnosis and targeted therapies. Furthermore, it calls for improved tracking of patient numbers, updating and disseminating literature to health providers, and building awareness in underserved areas to ensure accurate diagnoses and appropriate care. The resolution also expresses strong support for designating April 2025 as "Sjogren's Awareness Month" to further these goals.