This resolution expresses support for designating April 5, 2025, as "Barth Syndrome Awareness Day." Barth syndrome is a rare, life-threatening genetic disorder primarily affecting males, characterized by heart and muscle abnormalities, low white blood cell counts, and growth delays. It is often fatal in early childhood, and individuals who survive to adulthood face a severely limited life expectancy, along with challenges in diagnosis and accessing specialized care. The resolution recognizes the critical need for improved awareness, early diagnosis, and advanced research for this ultrarare disease. It emphasizes the importance of developing new treatments, diagnostics, and cures, and identifying effective regulatory pathways for drug development. The designation of an awareness day aims to generate additional support and provide hope and information for patients, caregivers, and families affected by Barth syndrome.