Expressing support for the designation of Undiagnosed Awareness Month.

This resolution expresses support for the designation of Undiagnosed Awareness Month, acknowledging the significant challenges faced by approximately 25,000,000 Americans living with rare and undiagnosed diseases. These individuals often endure prolonged uncertainty, delayed or inappropriate treatment, psychological distress, and financial hardship, with diagnostic journeys frequently lasting over seven years.

The resolution highlights the vital work of the Undiagnosed Diseases Network (UDN), established within the National Institutes of Health, which has diagnosed over 1,000 Americans and identified more than ninety novel diagnoses since 2015. It emphasizes that greater public awareness and medical education are crucial for reducing diagnostic delays and promoting equitable access to genomic and diagnostic technologies, ultimately aiming to provide timely and accurate diagnoses for patients.