Candis King Hope for Sickle Cell Families Act

This legislation directs the Secretary of Health and Human Services, acting through the Centers for Disease Control and Prevention, to establish a Sickle Cell Data Collection program . This program will provide grants to states to collect and maintain comprehensive data on the incidence and prevalence of sickle cell disease, including the demographics of affected individuals and their healthcare utilization patterns in the United States. The initiative also encourages collaboration among grantees and the CDC to enhance the standardization of sickle cell disease surveillance methods. To fund these critical data collection efforts, the bill authorizes an appropriation of $10,000,000 annually for fiscal years 2027 through 2031. Additionally, it mandates the reinstatement of specific employees within the CDC's Division of Blood Disorders and Public Health Genomics who were removed on or after January 1, 2025, as a result of certain agency actions, such as reductions in force or reorganizations.