This bill establishes a comprehensive national project, known as the "National Plan for Epilepsy," aimed at preventing, diagnosing, treating, and curing epilepsy. The Secretary of Health and Human Services is directed to develop and periodically update an integrated national plan, coordinate research and services across all federal agencies, and encourage the development of safe and effective treatments. The plan also seeks to improve early diagnosis, enhance the coordination of care for individuals with epilepsy, and review the disease's impact on physical, mental, and social health. To guide these efforts, the bill mandates the establishment of an **Advisory Council on Epilepsy Research, Care, and Services**. This council will include representatives from key federal departments and agencies, as well as expert non-federal members such as individuals living with epilepsy, caregivers, healthcare providers, and biomedical researchers. The Advisory Council is required to meet quarterly and provide regular reports to the Secretary and Congress, offering recommendations on federal programs, research, data collection, and strategies to improve patient outcomes and public awareness. The Secretary will also conduct annual assessments and submit reports to Congress detailing progress and priority actions.
Advisory bodiesCongressional oversightHealth promotion and preventive careMedical researchNeurological disorders
National Plan for Epilepsy Act
USA119th CongressHR-1189| House
| Updated: 2/11/2025
This bill establishes a comprehensive national project, known as the "National Plan for Epilepsy," aimed at preventing, diagnosing, treating, and curing epilepsy. The Secretary of Health and Human Services is directed to develop and periodically update an integrated national plan, coordinate research and services across all federal agencies, and encourage the development of safe and effective treatments. The plan also seeks to improve early diagnosis, enhance the coordination of care for individuals with epilepsy, and review the disease's impact on physical, mental, and social health. To guide these efforts, the bill mandates the establishment of an **Advisory Council on Epilepsy Research, Care, and Services**. This council will include representatives from key federal departments and agencies, as well as expert non-federal members such as individuals living with epilepsy, caregivers, healthcare providers, and biomedical researchers. The Advisory Council is required to meet quarterly and provide regular reports to the Secretary and Congress, offering recommendations on federal programs, research, data collection, and strategies to improve patient outcomes and public awareness. The Secretary will also conduct annual assessments and submit reports to Congress detailing progress and priority actions.