DeOndra Dixon INCLUDE Project Act of 2024

United States118th CongressHR-7406House of Representatives
Updated: Sep 18, 2024

Summary

DeOndra Dixon INCLUDE Project Act of 2024 This bill provides statutory authority for a National Institutes of Health (NIH) research program on Down syndrome. (Down syndrome is a genetic condition in which a person is born with an extra copy of chromosome 21, which can affect mental and physical development.) Specifically, the bill provides statutory authority for the NIH's Investigation of Co-occurring Conditions Across the Lifespan to Understand Down Syndrome Project (known as the INCLUDE Project). The project was initially established in 2018 to investigate the co-occurring conditions that affect those with Down syndrome (e.g., Alzheimer's disease) and their quality-of-life needs, particularly through (1) targeted research on chromosome 21, (2) assembling a large study population of individuals with Down syndrome, and (3) conducting clinical trials that include those with Down syndrome.

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Timeline

Latest companion bill action

S-3981: DeOndra Dixon INCLUDE Project Act of 2024

Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

  1. On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote. (text: CR H5304-5305)

    House of Representatives

  2. Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote. (text: CR H5304-5305)

  3. Motion to reconsider laid on the table Agreed to without objection.

    House of Representatives

  4. Received in the Senate and Read twice and referred to the Committee on Health, Education, Labor, and Pensions.

    Senate