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Accelerating Access to Critical Therapies for ALS Act

USA117th CongressS-1813| Senate 
| Updated: 5/25/2021
Christopher A. Coons

Christopher A. Coons

Democratic Senator

Delaware

Cosponsors (63)
Jeanne Shaheen (Democratic)Bill Cassidy (Republican)Mike Braun (Republican)Mazie K. Hirono (Democratic)Tammy Duckworth (Democratic)Roger Marshall (Republican)Margaret Wood Hassan (Democratic)Dan Sullivan (Republican)Jon Ossoff (Democratic)Dianne Feinstein (Democratic)Catherine Cortez Masto (Democratic)Patrick J. Leahy (Democratic)Richard J. Durbin (Democratic)Edward J. Markey (Democratic)Jack Reed (Democratic)Jerry Moran (Republican)Kirsten E. Gillibrand (Democratic)Elizabeth Warren (Democratic)Ben Ray Luján (Democratic)Alex Padilla (Democratic)Cynthia M. Lummis (Republican)Marsha Blackburn (Republican)Thomas R. Carper (Democratic)Mark R. Warner (Democratic)Angus S. King (Independent)Amy Klobuchar (Democratic)James M. Inhofe (Republican)John Boozman (Republican)Roy Blunt (Republican)Robert P. Casey (Democratic)Kyrsten Sinema (Independent)Sheldon Whitehouse (Democratic)Jacky Rosen (Democratic)Joe Manchin (Independent)John Thune (Republican)Mike Rounds (Republican)Chris Van Hollen (Democratic)Christopher Murphy (Democratic)Jon Tester (Democratic)Debbie Stabenow (Democratic)John Kennedy (Republican)Deb Fischer (Republican)Bill Hagerty (Republican)John Barrasso (Republican)Martin Heinrich (Democratic)Michael F. Bennet (Democratic)Tina Smith (Democratic)Sherrod Brown (Democratic)Bernard Sanders (Independent)Brian Schatz (Democratic)Tammy Baldwin (Democratic)Cory A. Booker (Democratic)Robert Menendez (Democratic)Jeff Merkley (Democratic)Susan M. Collins (Republican)Gary C. Peters (Democratic)Steve Daines (Republican)John Hoeven (Republican)Richard Blumenthal (Democratic)Mark Kelly (Democratic)Lisa Murkowski (Republican)Richard Burr (Republican)Shelley Moore Capito (Republican)

Health, Education, Labor, and Pensions Committee

  • Introduced
  • In Committee
  • On Floor
  • Passed Chamber
  • Enacted
Accelerating Access to Critical Therapies for ALS Act This bill establishes grant programs to address neurodegenerative diseases, such as amyotrophic lateral sclerosis (also known as ALS or Lou Gehrig's disease), and contains other related provisions. The Department of Health and Human Services (HHS) shall award grants to eligible entities to facilitate patients' access to investigational drugs that diagnose or treat ALS. The Food and Drug Administration (FDA) shall award grants to public and private entities to cover the costs of research and development of drugs that diagnose or treat ALS and other severely debilitating neurodegenerative diseases. HHS shall also establish the Public-Private Partnership for Neurodegenerative Diseases between the National Institutes of Health, the FDA, and at least one eligible entity (generally, an institution of higher education or a nonprofit organization). The partnership shall support the development and regulatory review of drugs that address ALS and other rare neurodegenerative diseases. The FDA shall publish on its website a five-year action plan for fostering the development of drugs that improve or extend the lives of people living with rare neurodegenerative diseases.
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Timeline

Bill from Previous Congress

S 116-4867
Accelerating Access to Critical Therapies for ALS Act
May 25, 2021
Introduced in Senate
May 25, 2021
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Dec 23, 2021

Latest Companion Bill Action

HR 117-3537
Presented to President.
  • Bill from Previous Congress

    S 116-4867
    Accelerating Access to Critical Therapies for ALS Act


  • May 25, 2021
    Introduced in Senate


  • May 25, 2021
    Read twice and referred to the Committee on Health, Education, Labor, and Pensions.


  • December 23, 2021

    Latest Companion Bill Action

    HR 117-3537
    Presented to President.

Health

Related Bills

  • HR 117-3537: Accelerating Access to Critical Therapies for ALS Act
Drug safety, medical device, and laboratory regulationDrug therapyGovernment information and archivesHealth care coverage and accessHealth programs administration and fundingHealth promotion and preventive careHigher educationMedical researchMedical tests and diagnostic methodsNeurological disordersPrescription drugsPublic-private cooperationResearch administration and fundingResearch and developmentSocial work, volunteer service, charitable organizations

Accelerating Access to Critical Therapies for ALS Act

USA117th CongressS-1813| Senate 
| Updated: 5/25/2021
Accelerating Access to Critical Therapies for ALS Act This bill establishes grant programs to address neurodegenerative diseases, such as amyotrophic lateral sclerosis (also known as ALS or Lou Gehrig's disease), and contains other related provisions. The Department of Health and Human Services (HHS) shall award grants to eligible entities to facilitate patients' access to investigational drugs that diagnose or treat ALS. The Food and Drug Administration (FDA) shall award grants to public and private entities to cover the costs of research and development of drugs that diagnose or treat ALS and other severely debilitating neurodegenerative diseases. HHS shall also establish the Public-Private Partnership for Neurodegenerative Diseases between the National Institutes of Health, the FDA, and at least one eligible entity (generally, an institution of higher education or a nonprofit organization). The partnership shall support the development and regulatory review of drugs that address ALS and other rare neurodegenerative diseases. The FDA shall publish on its website a five-year action plan for fostering the development of drugs that improve or extend the lives of people living with rare neurodegenerative diseases.
View Full Text

Suggested Questions

Get AI-generated questions to help you understand this bill better

Timeline

Bill from Previous Congress

S 116-4867
Accelerating Access to Critical Therapies for ALS Act
May 25, 2021
Introduced in Senate
May 25, 2021
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Dec 23, 2021

Latest Companion Bill Action

HR 117-3537
Presented to President.
  • Bill from Previous Congress

    S 116-4867
    Accelerating Access to Critical Therapies for ALS Act


  • May 25, 2021
    Introduced in Senate


  • May 25, 2021
    Read twice and referred to the Committee on Health, Education, Labor, and Pensions.


  • December 23, 2021

    Latest Companion Bill Action

    HR 117-3537
    Presented to President.
Christopher A. Coons

Christopher A. Coons

Democratic Senator

Delaware

Cosponsors (63)
Jeanne Shaheen (Democratic)Bill Cassidy (Republican)Mike Braun (Republican)Mazie K. Hirono (Democratic)Tammy Duckworth (Democratic)Roger Marshall (Republican)Margaret Wood Hassan (Democratic)Dan Sullivan (Republican)Jon Ossoff (Democratic)Dianne Feinstein (Democratic)Catherine Cortez Masto (Democratic)Patrick J. Leahy (Democratic)Richard J. Durbin (Democratic)Edward J. Markey (Democratic)Jack Reed (Democratic)Jerry Moran (Republican)Kirsten E. Gillibrand (Democratic)Elizabeth Warren (Democratic)Ben Ray Luján (Democratic)Alex Padilla (Democratic)Cynthia M. Lummis (Republican)Marsha Blackburn (Republican)Thomas R. Carper (Democratic)Mark R. Warner (Democratic)Angus S. King (Independent)Amy Klobuchar (Democratic)James M. Inhofe (Republican)John Boozman (Republican)Roy Blunt (Republican)Robert P. Casey (Democratic)Kyrsten Sinema (Independent)Sheldon Whitehouse (Democratic)Jacky Rosen (Democratic)Joe Manchin (Independent)John Thune (Republican)Mike Rounds (Republican)Chris Van Hollen (Democratic)Christopher Murphy (Democratic)Jon Tester (Democratic)Debbie Stabenow (Democratic)John Kennedy (Republican)Deb Fischer (Republican)Bill Hagerty (Republican)John Barrasso (Republican)Martin Heinrich (Democratic)Michael F. Bennet (Democratic)Tina Smith (Democratic)Sherrod Brown (Democratic)Bernard Sanders (Independent)Brian Schatz (Democratic)Tammy Baldwin (Democratic)Cory A. Booker (Democratic)Robert Menendez (Democratic)Jeff Merkley (Democratic)Susan M. Collins (Republican)Gary C. Peters (Democratic)Steve Daines (Republican)John Hoeven (Republican)Richard Blumenthal (Democratic)Mark Kelly (Democratic)Lisa Murkowski (Republican)Richard Burr (Republican)Shelley Moore Capito (Republican)

Health, Education, Labor, and Pensions Committee

Health

Related Bills

  • HR 117-3537: Accelerating Access to Critical Therapies for ALS Act
  • Introduced
  • In Committee
  • On Floor
  • Passed Chamber
  • Enacted
Drug safety, medical device, and laboratory regulationDrug therapyGovernment information and archivesHealth care coverage and accessHealth programs administration and fundingHealth promotion and preventive careHigher educationMedical researchMedical tests and diagnostic methodsNeurological disordersPrescription drugsPublic-private cooperationResearch administration and fundingResearch and developmentSocial work, volunteer service, charitable organizations