Recognizing the extraordinary challenges faced by patients of color with rare diseases and the need to identify and promote evidenced-based solutions to alleviate the disproportionate burden of rare diseases on these communities and supporting the recognition of the last day in February as "Rare Disease Day".
United States117th CongressHRES-948House of Representatives
Updated: Feb 28, 2022
Summary
This resolution supports the designation of Rare Disease Day and recognizes the importance of decreasing rare diseases, especially among people of color.
Bill texts
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Timeline
Referred to the House Committee on Energy and Commerce.
House of Representatives
Sponsor introductory remarks on measure. (CR E185-186)
Referred to the Subcommittee on Health.
House of Representatives
Introduced in House
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