Legis Daily

RARE Act of 2022

USA117th CongressHR-9676| House 
| Updated: 12/22/2022
André Carson

André Carson

Democratic Representative

Indiana

Energy and Commerce Committee

  • Introduced
  • In Committee
  • On Floor
  • Passed Chamber
  • Enacted
Rare disease Advancement, surveillance Research, and Education Act of 2022 or the RARE Act of 2022 The bill reauthorizes through FY2028 the National Institutes of Health Rare Disease Regional Centers of Excellence and expands activities to facilitate research and increase awareness of rare diseases and conditions. (Rare diseases and conditions are those with a prevalence of fewer than 200,000 individuals in the United States.) The Centers for Disease Control and Prevention may expand infrastructure and activities to track the epidemiology of up to four rare diseases and conditions and incorporate this information into a National Rare Disease or Condition Surveillance System. The Agency for Healthcare Research and Quality must expand its activities to increase health care providers' awareness of rare diseases and conditions. The National Academies of Sciences, Engineering, and Medicine, or another appropriate entity, must update the 2010 report Rare Diseases and Orphan Products: Accelerating Research and Development.
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Timeline

Bill from Previous Congress

HR 116-4228
RARE Act of 2019
May 11, 2022

Latest Companion Bill Action

S 117-4185
Introduced in Senate
Dec 22, 2022
Introduced in House
Dec 22, 2022
Referred to the House Committee on Energy and Commerce.
Dec 22, 2022
Sponsor introductory remarks on measure. (CR E1335-1336)
  • Bill from Previous Congress

    HR 116-4228
    RARE Act of 2019


  • May 11, 2022

    Latest Companion Bill Action

    S 117-4185
    Introduced in Senate


  • December 22, 2022
    Introduced in House


  • December 22, 2022
    Referred to the House Committee on Energy and Commerce.


  • December 22, 2022
    Sponsor introductory remarks on measure. (CR E1335-1336)

Health

RARE Act of 2022

USA117th CongressHR-9676| House 
| Updated: 12/22/2022
Rare disease Advancement, surveillance Research, and Education Act of 2022 or the RARE Act of 2022 The bill reauthorizes through FY2028 the National Institutes of Health Rare Disease Regional Centers of Excellence and expands activities to facilitate research and increase awareness of rare diseases and conditions. (Rare diseases and conditions are those with a prevalence of fewer than 200,000 individuals in the United States.) The Centers for Disease Control and Prevention may expand infrastructure and activities to track the epidemiology of up to four rare diseases and conditions and incorporate this information into a National Rare Disease or Condition Surveillance System. The Agency for Healthcare Research and Quality must expand its activities to increase health care providers' awareness of rare diseases and conditions. The National Academies of Sciences, Engineering, and Medicine, or another appropriate entity, must update the 2010 report Rare Diseases and Orphan Products: Accelerating Research and Development.
View Full Text

Suggested Questions

Get AI-generated questions to help you understand this bill better

Timeline

Bill from Previous Congress

HR 116-4228
RARE Act of 2019
May 11, 2022

Latest Companion Bill Action

S 117-4185
Introduced in Senate
Dec 22, 2022
Introduced in House
Dec 22, 2022
Referred to the House Committee on Energy and Commerce.
Dec 22, 2022
Sponsor introductory remarks on measure. (CR E1335-1336)
  • Bill from Previous Congress

    HR 116-4228
    RARE Act of 2019


  • May 11, 2022

    Latest Companion Bill Action

    S 117-4185
    Introduced in Senate


  • December 22, 2022
    Introduced in House


  • December 22, 2022
    Referred to the House Committee on Energy and Commerce.


  • December 22, 2022
    Sponsor introductory remarks on measure. (CR E1335-1336)
André Carson

André Carson

Democratic Representative

Indiana

Energy and Commerce Committee

Health

  • Introduced
  • In Committee
  • On Floor
  • Passed Chamber
  • Enacted