Legis Daily

Aidan’s Law

USA116th CongressHR-534| House 
| Updated: 1/25/2019
Yvette D. Clarke

Yvette D. Clarke

Democratic Representative

New York

Cosponsors (5)
Dwight Evans (Democratic)Nita M. Lowey (Democratic)Lee M. Zeldin (Republican)Bobby L. Rush (Democratic)Zoe Lofgren (Democratic)

Health Subcommittee, Energy and Commerce Committee

  • Introduced
  • In Committee
  • On Floor
  • Passed Chamber
  • Enacted
Aidan's Law This bill authorizes newborn screenings for adrenoleukodystrophy (also known as ALD), which is a hereditary condition that damages the insulating membrane of nerve cells in the brain. The bill authorizes hospitals, child care centers, clinics, and similar institutions to test newborns for ALD in accordance with state protocols; such protocols must be approved by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children. The bill also reauthorizes for FY2020-FY2023 the heritable disorders screening program for newborns and children that is administered by the Health Resources and Services Administration.
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Timeline
Jan 14, 2019
Introduced in House
Jan 14, 2019
Referred to the House Committee on Energy and Commerce.
Jan 25, 2019
Referred to the Subcommittee on Health.
  • January 14, 2019
    Introduced in House


  • January 14, 2019
    Referred to the House Committee on Energy and Commerce.


  • January 25, 2019
    Referred to the Subcommittee on Health.

Health

Advisory bodiesChild healthHealth promotion and preventive careHereditary and development disordersMedical tests and diagnostic methodsNeurological disorders

Aidan’s Law

USA116th CongressHR-534| House 
| Updated: 1/25/2019
Aidan's Law This bill authorizes newborn screenings for adrenoleukodystrophy (also known as ALD), which is a hereditary condition that damages the insulating membrane of nerve cells in the brain. The bill authorizes hospitals, child care centers, clinics, and similar institutions to test newborns for ALD in accordance with state protocols; such protocols must be approved by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children. The bill also reauthorizes for FY2020-FY2023 the heritable disorders screening program for newborns and children that is administered by the Health Resources and Services Administration.
View Full Text

Suggested Questions

Get AI-generated questions to help you understand this bill better

Timeline
Jan 14, 2019
Introduced in House
Jan 14, 2019
Referred to the House Committee on Energy and Commerce.
Jan 25, 2019
Referred to the Subcommittee on Health.
  • January 14, 2019
    Introduced in House


  • January 14, 2019
    Referred to the House Committee on Energy and Commerce.


  • January 25, 2019
    Referred to the Subcommittee on Health.
Yvette D. Clarke

Yvette D. Clarke

Democratic Representative

New York

Cosponsors (5)
Dwight Evans (Democratic)Nita M. Lowey (Democratic)Lee M. Zeldin (Republican)Bobby L. Rush (Democratic)Zoe Lofgren (Democratic)

Health Subcommittee, Energy and Commerce Committee

Health

  • Introduced
  • In Committee
  • On Floor
  • Passed Chamber
  • Enacted
Advisory bodiesChild healthHealth promotion and preventive careHereditary and development disordersMedical tests and diagnostic methodsNeurological disorders