To amend the Public Health Service Act, in relation to requiring adrenoleukodystrophy screening of newborns.

United States115th CongressHR-5453House of Representatives
Updated: Apr 10, 2018

Summary

Aidan's Law This bill authorizes newborn screenings for adrenoleukodystrophy (also known as ALD), which is a hereditary condition that damages the insulating membrane of nerve cells in the brain. The bill authorizes hospitals, child care centers, clinics, and similar institutions to test newborns for ALD in accordance with state protocols; such protocols must be approved by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children. The bill also reauthorizes through FY2022 the heritable disorders screening program for newborns and children that is administered by the Health Resources and Services Administration.

Bill texts

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Introduced (House)View official text

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Timeline

  1. Referred to the House Committee on Energy and Commerce.

    House of Representatives

  2. Introduced in House

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