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To expand and improve the programs and activities of the Department of Health and Human Services for awareness, education, research, surveillance, diagnosis, and treatment concerning rare diseases and conditions.

USA115th CongressHR-5115| House 
| Updated: 3/2/2018
André Carson

André Carson

Democratic Representative

Indiana

Cosponsors (19)
Thomas MacArthur (Republican)Mo Brooks (Republican)Stephanie N. Murphy (Democratic)Mark Pocan (Democratic)Karen Bass (Democratic)Joyce Beatty (Democratic)Thomas R. Suozzi (Democratic)Peter A. DeFazio (Democratic)Ted Lieu (Democratic)Ro Khanna (Democratic)Elizabeth H. Esty (Democratic)Peter J. Roskam (Republican)Doris O. Matsui (Democratic)Ryan A. Costello (Republican)Peter J. Visclosky (Democratic)Eleanor Holmes Norton (Democratic)Julia Brownley (Democratic)Brian K. Fitzpatrick (Republican)Jaime Herrera Beutler (Republican)

Health Subcommittee, Energy and Commerce Committee

  • Introduced
  • In Committee
  • On Floor
  • Passed Chamber
  • Enacted
Rare disease Advancement, Research, and Education Act of 2018 or the RARE Act of 2018 This bill reauthorizes through FY2023 the Office of Rare Diseases in the National Institutes of Health. The bill requires (1) the Centers for Disease Control and Prevention to expand infrastructure and activities to track the epidemiology of rare diseases and conditions and to incorporate this information into a National Rare Disease or Condition Surveillance System, and (2) the Agency for Healthcare Research and Quality to expand its activities to increase providers' awareness of rare diseases and conditions.
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Timeline
Feb 27, 2018
Introduced in House
Feb 27, 2018
Referred to the House Committee on Energy and Commerce.
Mar 2, 2018
Referred to the Subcommittee on Health.
  • February 27, 2018
    Introduced in House


  • February 27, 2018
    Referred to the House Committee on Energy and Commerce.


  • March 2, 2018
    Referred to the Subcommittee on Health.

Health

Congressional oversightGovernment information and archivesHealth information and medical recordsHealth personnelHealth programs administration and fundingHealth promotion and preventive careMedical researchMedical tests and diagnostic methodsPublic-private cooperationResearch administration and fundingResearch and development

To expand and improve the programs and activities of the Department of Health and Human Services for awareness, education, research, surveillance, diagnosis, and treatment concerning rare diseases and conditions.

USA115th CongressHR-5115| House 
| Updated: 3/2/2018
Rare disease Advancement, Research, and Education Act of 2018 or the RARE Act of 2018 This bill reauthorizes through FY2023 the Office of Rare Diseases in the National Institutes of Health. The bill requires (1) the Centers for Disease Control and Prevention to expand infrastructure and activities to track the epidemiology of rare diseases and conditions and to incorporate this information into a National Rare Disease or Condition Surveillance System, and (2) the Agency for Healthcare Research and Quality to expand its activities to increase providers' awareness of rare diseases and conditions.
View Full Text

Suggested Questions

Get AI-generated questions to help you understand this bill better

Timeline
Feb 27, 2018
Introduced in House
Feb 27, 2018
Referred to the House Committee on Energy and Commerce.
Mar 2, 2018
Referred to the Subcommittee on Health.
  • February 27, 2018
    Introduced in House


  • February 27, 2018
    Referred to the House Committee on Energy and Commerce.


  • March 2, 2018
    Referred to the Subcommittee on Health.
André Carson

André Carson

Democratic Representative

Indiana

Cosponsors (19)
Thomas MacArthur (Republican)Mo Brooks (Republican)Stephanie N. Murphy (Democratic)Mark Pocan (Democratic)Karen Bass (Democratic)Joyce Beatty (Democratic)Thomas R. Suozzi (Democratic)Peter A. DeFazio (Democratic)Ted Lieu (Democratic)Ro Khanna (Democratic)Elizabeth H. Esty (Democratic)Peter J. Roskam (Republican)Doris O. Matsui (Democratic)Ryan A. Costello (Republican)Peter J. Visclosky (Democratic)Eleanor Holmes Norton (Democratic)Julia Brownley (Democratic)Brian K. Fitzpatrick (Republican)Jaime Herrera Beutler (Republican)

Health Subcommittee, Energy and Commerce Committee

Health

  • Introduced
  • In Committee
  • On Floor
  • Passed Chamber
  • Enacted
Congressional oversightGovernment information and archivesHealth information and medical recordsHealth personnelHealth programs administration and fundingHealth promotion and preventive careMedical researchMedical tests and diagnostic methodsPublic-private cooperationResearch administration and fundingResearch and development